If you have been told that you are expecting a anencephalic newborn you probably have thousands of questions about what anencephaly is, what you can expect, and how this could have possibly happened.
You are not alone. Anencephaly is far more common than most people realize, and can be an incredibly difficult diagnosis to deal with. You may wonder if you did anything to cause the condition, or what can be done to prevent it from happening again. You also have choices to make about carrying to term versus abortion along with many other decisions.
For families who choose to carry the fetus to term, organ donation is a common topic of discussion. You can find out more about what anencephaly is, what you can expect at the time of delivery and facts about organ donation here: What Is Anencephaly?